TYLER UPDATE

The news is not good. It seems God has not finished testing our little boy and his family. I’m posting his Caring Bridge page and including the link. Your prayers are always appreciated. Tyler’s dad has him on his insurance and his treatments over the last year have run into the hundreds of thousands. The family will incur expenses for travel, meals, missed work, etc. And all this for a second Christmas in a row. I know money is tight, but if you have a couple dollars, I’m sure the family would put it to good use.

Tyler’s Story

Welcome to our CaringBridge site. We’ve created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.

Latest Journal Update

It has been quite some time since I have posted an update. Things got rough for a few weeks after Tyler finished radiation in June, but he completed treatment in August, had his port removed in October, & I honestly thought this journal would become a memory time capsule.

Unfortunately, life, & Cancer had other plans.

Tyler started experiencing pain in his left knee on Thanksgiving night. After a visit with his doctors on December 4th, & over a week of scheduled Ibuprofen & Hycet (codene & Tylenol), Tyler’s pain continued to worsen. Since he was already scheduled for his 3 month follow up scans, we decided to push them up to this past Thursday, & add on more tests, to try & find out what was happening.

After 3 straight days of scans, we now know what has been causing Tyler’s pain, & it’s not the news we wanted to hear. Tyler’s cancer is back, & is believed to have spread. He has a tumor in his back from the L-1 vertebrae, down through the end of the sacral vertebrae, & it has wrapped around his spine, encasing the nerves. The largest part is at the base of the sacral, below the spine. He also has a lesion on his T-3 vertebrae, & a spot on his brain, though they do not know if the spot on his brain is cancerous or just a blood vessel. The primary concern is the tumor in his back. He will have a port placed again tomorrow, & will begin chemo tomorrow as well. We are meeting with his radiologist on Tuesday, & he will start radiation as soon as possible. His treatment schedule will be outpatient, 5 day cycles, every 3 weeks, for a year. The biggest priority right now is to stop the tumor from growing any further. Besides the knee pain, he has not shown any neurological effects. In fact, neither his oncologist or neurosurgeons could explain why the pain presented in his knee. I believe that it was God’s intervention, as you can not see the tumor from the outside, & it could have been much worse had it been discovered any later.

To say that we are devastated would be a gross understatement. It has felt like a recurring bad dream, since it was exactly a year ago that he was first diagnosed. We are going to tell Tyler tomorrow morning, & he will likely be in the hospital through the week while we get a handle on everything. He is the strongest, bravest boy, who shouldn’t have to go through this. With God’s grace, & a lot of prayer, love, & support, I believe that he can beat this. It’s going to be a long road, but we are going to do everything we can to help Tyler beat cancer for the second time.

Thank you for all of your love & prayers, & please keep them coming.

MAKES MY OWN LITTLE PROBLEMS SEEM PIDDLING. HE’S ONLY SEVEN YEARS OLD.

http://www.caringbridge.org/visit/tylerlevine3

THIS IS THE GOFUNDME PAGE
https://www.gofundme.com/u4esvhjw